Senator Ted Kennedy and good endings

I just read this article in the NYT and it got me thinking :

After Diagnosis, Determined to Make a ‘Good Ending’

By MARK LEIBOVICH

Published: August 27, 2009

From the time his brain cancer was diagnosed 15 months ago, Senator Kennedy spoke of having a “good ending for myself.”

http://www.nytimes.com/2009/08/27/us/politics/27year.html

The Kennedy family's contributions to policies and impact on the lives of all Americans are profound and will shape the stories we tell about what it is to be a "good" American for years to come. With the death of both Eunice and Ted this month,I 'm glad to see so much media attention being paid to their positive examples of public service as a reminder that 'government' is not a four letter word.

What struck me about this article were the specific details about what a good death meant to Senator Kennedy, sailing, dinner parties when he felt up to it, eating mocha chip ice cream and watching James Bond movies with his wife. Yes, he was the 'Lion of the Senate' but he was also a simple human who found comfort in the same things we all do. Even without the money, influence and prestige he enjoyed, most of us have someone who will bring us ice cream and watch a movie with us. No one is exempt from suffering but luckily most of us can find enjoyment in small things.

I also like that the article pointed out that having brain cancer gave Ted Kennedy time to be with his family and say goodbye, time to work on his memoir and receive appreciation from his colleagues and friends. Of course it's in comparison to the untimely assassinations of his his two brothers; still this is the first time I've seen death by brain cancer mentioned with a positive slant in the mainstream media, as something other than a dread and terrifying monster of a disease.

I'm glad Senator Kennedy got his "storybook ending" even as I know that the living of it for him was something different, more messily human than the story, but no less grand.

Instaneously...if not sooner

That's how quickly people expect to receive their news in this era of online connectivity and social networking. Example: a photo of the United Airways plane "landing" in the Hudson River was up on Flickr before network news could say "webcam". Physicians have similar expectations. Although they may not be techno-wizzards, they're interested in receiving data on patient outcomes ASAP, before investigators have had time to prepare it for publication, and certainly before the manuscript has made it through the peer review process.

In a commentary in this week's JAMA titled "Registries for Robust Evidence", authors Nancy Dreyer and Sarah Garner called for the establishment of data registries organized around specific conditions, exposures, or products to fill the critical gap between knowledge generation and scholarly journal publication.


In parallel event, PLoS (Public Library of Science) announced today a beta version of a new database devoted to the rapid reporting of research related to influenza, PLoS Currents . According to their news release, it will be a "moderated collection for the rapid and open sharing of useful new scientific data, analyses, and ideas in the field of influenza". It's about time.